Pelvic Partnership: supporting you with information about Pelvic Girdle Pain (PGP)

Category: Blog

Written by Lucy Ryan, the Pelvic Partnership, January 2018. 

The Pelvic Partnership is bidding to bag a massive cash boost from the Tesco Bags of Help initiative.

Tesco teamed up with Groundwork to launch its community funding scheme, which sees grants of up to £4,000, up to £2,000 and £1,000 raised from carrier bag sales in Tesco stores awarded to local community projects.

Three groups in every Tesco region have been shortlisted to receive the cash award and shoppers are being invited to head along to Tesco stores to vote for which cause they think should take away the top grant.

We are delighted that the Pelvic Partnership YouTube video project is one of the charity projects on the shortlist for funding.

Voting for our charity project is open at the following Tesco stores throughout January and February. Customers can cast their vote using a token given to them at the check-out in store each time they shop. Please help us to raise as much money as possible by voting at:

  • Didcot Tesco Superstore – OX11 9BZ
  • Cockcroft Tesco Express, Didcot – OX11 8LL
  • Cholsey Tesco Express – OX10 9ND
  • Gatehampton Road Tesco Express, Goring – RG8 0ER

Pregnancy-related Pelvic Girdle Pain (PGP) affects around 1 in 5 pregnant women, with many local women affected. It is a treatable condition with manual therapy and research suggests without intervention many women are unlikely to recover. This project is needed because treatment offered is variable across the country and women are often wrongly told that nothing can be done to help them.

We will produce a YouTube video providing key information about how to treat and manage PGP. This video will include a demonstration of assessment and manual therapy treatment by an experienced physiotherapist. We currently provide information via our publications, website, and telephone helpline and this video will help us demonstrate effective treatment on an easily accessible platform: YouTube.

This project will have a significant influence on raising awareness of PGP and its treatment, and will improve the lives of pregnant women locally and throughout the UK. Here are a couple of examples of women the Pelvic Partnership have helped to access the right treatment and support:

Mollie’s experience of PGP: ‘During my pregnancy in 2014/2015 I suffered with severe PGP. The Pelvic Partnership website was the only source of information I could find that had detailed and accurate information about the condition. What hit me most was the emotional side of PGP, the isolation and sudden ‘disability’ that appeared overnight. I was forced to give up work for 6 months until my baby was born and many times your website made me feel like I wasn’t alone or going crazy! 

A year on I was still struggling with PGP and I finally saw a physio on your recommended practitioners list. I walked out of there pain free for the first time in 2 years, an absolute miracle. Now I have lots of exercises to do daily but I am much much better and will return to my physio to have a check over. 

You can not see the difference you are making through a website, there are many people like me who have used it for information and never actually made contact. Remember the thousands you are helping without even knowing it! Thank you ever so much from the bottom of my heart. I will recommend you and continue to raise awareness of your amazing service.’

Jenny had PGP symptoms for six years. It started in her first pregnancy and got worse with each pregnancy. In her third pregnancy she was on crutches from eight weeks, used a wheelchair from 28 weeks, then was bed bound from 34 weeks. She eventually found the Pelvic Partnership helpline and was encouraged to seek manual therapy treatment for her symptoms. She went on to receive treatment from an osteopath who has changed her life: “I can’t thank you enough, I spoke to someone from the Pelvic Partnership on the phone and they told me if I didn’t see a manual therapist I would be likely to have this pain for the rest of my life. I was scared to see someone who was going to click around my bones but after talking on the phone I knew I had to see someone. I found an osteopath and CANNOT BELIEVE that I’m pain free. It is an absolute miracle. I’ve had the pain so long now I just accepted it into my life. Thank you so much. I’m going to start to be normal again now.”

Tesco’s Bags of Help project has already delivered over £40 million to 9,700 projects up and down the UK. Tesco customers get the chance to vote for three different groups every time they shop. Every other month, when votes are collected, three groups in each of Tesco’s regions will be awarded funding.

Alec Brown, Head of Community at Tesco, said:

“We are absolutely delighted to open the voting for January and February. There are some fantastic projects on the shortlists and we can’t wait to see these come to life in hundreds of communities.”

Groundwork’s National Chief Executive, Graham Duxbury, said:

“We’ve been thrilled to see the diversity of projects that have applied for funding, ranging from outdoor classrooms, sports facilities, community gardens, play areas and everything in between.

“We’re looking forward to learning the results of the customer vote and then supporting each group to bring their project to life.”

Written by Madeleine Speed, the Pelvic Partnership, December 2017 

If you’re a regular visitor to the Pelvic Partnership website, you might notice we continually add new information and images to enable women with pregnancy-related pelvic girdle pain (PGP) to keep up-to-date with best practice in the treatment, management and their understanding of PGP. Over this year, we have been working hard to develop a new section of our website which is now ready for you to view.

Why has a new section been developed?

Most women who experience PGP will make a full recovery, usually as a direct result of:

  • an early and accurate diagnosis, as soon as the symptoms occur,
  • rapid access to correct treatment with ‘hands-on’ manual therapy,
  • appropriate exercise and rehabilitation following ‘hands-on’ treatment.

We’ve developed the new section to meet the needs of women who have had PGP symptoms for weeks, months or even years after they have had a baby (or several babies to complete their family). If this sounds like you, please read on. You may be a smaller group than those who make a relatively quick and full recovery. However, even with longer-term problems with PGP, you are likely to go on to make a full recovery although your journey may not be quite as smooth, straightforward or clear-cut. There may be periods of good progress and then a set-back so it feels like one step forward and two back.

We wanted to give you more of a helping hand and greater encouragement to find real progress in your recovery from PGP. So we have made it a priority to provide more information, ideas and suggestions to encourage you to find good ‘hands-on’ treatment from an experienced physiotherapist, chiropractor or osteopath. We also wanted to empower you to adopt habits and approaches that can help you towards recovery. For some, this may not be a complete ending of PGP symptoms but at the very least it should bring you tangible improvements to a point where you can manage on-going niggles and flare-ups around your normal daily activities.

The aim was also to provide an insight and pointers to help you understand your own individual triggers of painful symptoms and suggest tips on how to reduce them, helping you recognise what to avoid or repeat, day-to-day. So the new section covers practicalities such as getting your levels of activity pitched right for you – too little and you can’t make progress, too much and you can set yourself back.

Other reasons for the development of this web section include:

  • an explanation about the treatment and management options for chronic pain,
  • information about other common pelvic pain conditions that could be contributing to pain levels and relevant signposts to key organisations who may be able to offer focused help for these conditions.

What has been added?

We have included some new topic areas and we have also extended some of the information contained under existing subject areas to add value and improve the level of detail provided. In some instances, details have needed to change to reflect new research or practices. So, the new pages in this section are:

  • Surgery – this topic was already covered but we have updated and added to it.

In the process of creating these pages, we realised that we needed to update some other pages within our website too so that these were in keeping and consistent. This has meant that we have changed and enhanced the following pages:

We hope this new information provides a range of ideas and suggestions to motivate and support you on your journey to recovery or effective management of PGP.

Charity Registered in England: 1100373 

Please note, the Pelvic Partnership consists of volunteers who have had Pelvic Girdle Pain and wish to support other women. We aim to pass on information based on research evidence where available. We are not medical professionals and cannot offer medical advice. The Pelvic Partnership takes no responsibility for any action you do or do not take as a result of reading this information.

   © Copyright Pelvic Partnership 2018. Website content reviewed and updated: 2016 - 2017

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